Strongbones Children’s Charitable Trust is a national registered charity set up to provide emotional and practical support, increase inclusion by providing disability equipment and educational opportunities including workshops and facilities. We also provide support for parents and carers, access to sports and activities and family interaction days for the benefit of children and young people under the age of twenty one who have a serious muscular skeletal condition such as scoliosis, bone cancer, scoliosis or spina bifida alongside complex needs and/or learning disabilities.
The charity has now been registered for over 17 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level.
Our aim is to encourage children and young people with lifelong medical conditions to grow by supporting them and their families and carers by allowing each young person to gain experience as individuals enriching their lives through, inclusion, stimulation, inspiration and education.
We believe that by working with and supporting families we can increase aspirations and widen understanding to ensure our young people live more fulfilled lives.
We take children out of social isolation and give them the ability to participate in everyday life and help support families whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family.
The majority of the children we encounter come from the most socially isolated sections of society, this coupled with the fact that many of their parents have had to give up employment to provide essential round the clock care for the life altering conditions of their children. Many people will not appreciate how much strength and resilience is needed to care for a disabled child, we feel society overlooks these parents, siblings and carers leaving them and their children feeling abandoned by the outside world.