Support Forum Access

We have been working hard to not just provide financial assistance, but also provide a friendly and considerate ear to parents who need advice. We have set up an online network support forum on Facebook where families can be put in contact with those in similar circumstances as themselves, and share stories of their children’s prognosis and progress. We now have 1,000 families that help and advise each other .  This is a private Facebook profile that you have to request to join on the link below.  We also have a Facebook like page but this is for general updates and supporters to follow.  For confidentially please use the link below.  This profile support page is run by Rachael and April .

Please click on the link below and add us a friend.


Alternatively if you would like to discuss anything confidentially please contact our grants officer April on 01708 750599

My son won a bravery award. I felt so proud. The medal hangs on his bed. Strongbones makes you feel like you matter, that someone out there cares. Hard as it is to write Strongbones was there for me when i wanted to end it all. There on the end of the phone when I just didn’t want to carry on Strongbones gave us a holiday gave us family time. It’s what we needed. Away from the world. That act of kindness will stay with me .

The wonderful party’s filled us with joy and is something that will live long in our hearts. It’s what is so needed. Must be hard work for the Strongbones team . These days are important for memories of joy and laughter and meeting friends in same situ . At events your child is just that a child. No one sees the tubes, the wires , the equipment we carry around. They just see our child. And fill the day with happiness and memories.”

~ Alison Matthews