We provide a friendly and considerate ear to parents who need advice or just someone to talk to. Our advisors all have a vast knowledge base of caring for a disabled child with lived experience covering newly diagnosed through to palliative care.

We have a online network support forum on Facebook where families can be put in contact with those in similar circumstances as themselves, ask us questions or share stories of their children’s prognosis and progress. We currently have over 1,000 active members ultilising our support forum.

This is a private Facebook profile that you have to request to join on the link below and send us a letter of diagnosis via messenger before you can be added. We are here to answer all your questions and support you during times of struggle.

Whether it be advice on conditions, worries of upcoming procedures, equipment, transition to adult services, guidance on entitlements, education issues, palliative care, social isolation or just that its a bad day, we are here to help so please join our community because together we are stronger.